Hemophilia is a rare lifelong disease that affects the blood’s ability to clot, which can cause internal bleeding, joint damage, infection, and death. Hemophiliacs easily bruise. When they need to undergo surgery, they bleed more than usual. Even the smallest cuts can endanger their lives when left untreated. Hemophiliacs can’t do the things other people can do–even something as mundane as playing some sports.

However, being diagnosed with hemophilia shouldn’t be considered a curse. Hemophiliacs, like all other people afflicted with similar disorders, do not want to be defined by their disease and be limited by it. Through proper care and management, hemophiliacs can do things they want to do.

Hemophilia may be complicated to deal with, but dealing with the condition is necessary so that patients can live a relatively normal life. For that, here are the ways that hemophiliacs, their caregivers, and loved ones can do to manage hemophilia:

Comprehensive Care

Taking care of the patient’s overall well-being is far more effective than constantly doing band-aid solutions to bleeding wounds. Doing comprehensive care for hemophiliacs involves the following:

bleeding management;
complication management;
prevention of bleeding and joint damage; and,
giving attention to the patient’s psycho-social health.
Hematologists, nurses, physiotherapists, and social workers are primary members that can best take care of a hemophiliac. These people have a wide knowledge of different disciplines, making them appropriate to take care of a hemophiliac’s other needs, such as emotional or social.

Fitness and Physical Activity

Studies show that being active can improve the quality of hemophiliac’s life. It can help improve the strength of the patient’s body and mind. This means  having stronger muscles and joints, improved balance and coordination, and higher self-esteem and confidence.

Hemophiliacs can choose a sport or routine based on their interests and age. They can do swimming, cycling, or walking as these exercises are low-risk. However, they should also choose their exercise routine very wisely, as some can cause serious bleeding, such as contact sports (e.g. football, rugby, wrestling, and boxing).

Treatment

Factor Replacement Therapy is the primary treatment for hemophilia. It is usually done during or before severe cases of bleeding, whether internally or externally. The therapy happens by injecting clotting agents into the veins of the patient, making blood clotting faster.

In the Philippines, Factor Replacement Therapy costs thousands of pesos, which can make it hard for ordinary Filipino hemophiliacs to acquire treatment. Hemophiliacs have ManilaMed as an ally by providing the best care for hemophilia that is also down to earth and affordable.

You can inquire an appointment at their website here at www.manilamed.com.ph